Harry

Humble yourselves, therefore, under God's mighty hand, that he may lift you up in due time. Cast all your anxiety on him because he cares for you. 1 Peter 5:6-7

Harry has had a few seizures lately. If you are a parent, you've discovered that you can put up with a lot of sickness in your own life, but when your kids get sick, it becomes an entirely different issue. You love them and you don't want them to suffer and you just want to "fix" them and make it all better. The Dad has had seizures (though his have been tonic-clonic, while Harry's seem to be "gentler" complex partial seizures with secondary generalization [more info]), but The Dad takes his meds and doesn't think it about too much. With Harry, though, we want to get to the bottom of it and figure this thing out. Unfortunately, with this type of thing, there's usually not much that can be figured out- you just learn to live with it. The EEG shows us that there is a lot of "seizure-like" activity going on, but there is no discernible cause. Maybe it's just because he's so smart and there's so much learning going on in there!

He started taking medicine to prevent the seizures. When he had a seziure after being on the meds for two weeks, we were quite discouraged. Then, when the doctor's nurse told us to TRIPLE the dose from 100 mg twice a day to 200 mg thrice a day, we were concerned. After The Mom went and sat in the doctor's office and staged a sit-in (I'm not sure if she threatened a hunger strike or not) until he would talk to her, we found out there was some sort of miscommunication and it turns out that it was only supposed to 100 mg thrice a day (a 50% increase, rather than a 200% increase). Big miscommunication. That's an increase in medication we can handle. At this point, we'll increase the medicine and hope that suppresses any future seizures.

Though we want to fix things, we've got to learn to rely on God to help us through this. The passage above was pointed out to us by several people when this first started happening. All I can say is that we are trying!